Abstract: In India hematological malignancies as a group were the sixth most common with 8.77% patients. Serious illness has an adverse effect on patients, family, relatives and friends. Leukemia patients suffer from multidimensional experience related to physical symptoms, psychological distress, existential concerns, and social-relational worries. Unfortunately, many of these caregivers are risking their own personal wellbeing and sometimes their family life in the process. Many caregivers are not fully aware of the short and long term consequences of doing it all alone because they are so overwhelmed with managing their daily tasks and responsibility.
Quantitative approach using descriptive design was adopted for the present study. The sample for the present study was comprised of the caregivers of leukemia patients who were regularly attending OPD with patient in selected hospitals under study and is main family caregiver. One hundred fifty caregivers of patients suffering from leukemia were included in member. Paper and pencil techniques were selected to collect data regarding knowledge of caregivers of leukemia patients. Data collection was done using standardized Care burden (Novak and Guest’s) Caregiver Burden Inventory. Results shows that majority of caregivers of leukemia patients had sever care burden. The study found that mean care burden score was high and thus required intervention. As observed in findings, maintaining and improving the health care status of the caregiver of leukemia patients is very important and thus caregivers need support to take care of their near ones.
Keywords: Caregiver, leukemia and care burden.
Title: DESCRIPTIVE STUDY TO ASSESS THE LEVEL OF CARE BURDEN AMONG CAREGIVERS OF LEUKEMIA PATIENTS
Author: Ms Rekha Rani Nar, Prof. Kanwaljit Gill MN, Phd
International Journal of Life Sciences Research
ISSN 2348-313X (Print), ISSN 2348-3148 (online)
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